Good thing there is a date marker on the bottom of the computer screen because I can't keep my days straight anymore! Today has been a frustratingly emotional day, although Ebonie is making progress it's hard to watch her just laying there sleeping and unable to communicate.
The morning started with Dr. L (iykyk) stating again that she was making progress, but he is still not comfortable with where she is currently. He wants more fluid off of her body to relieve her heart from the stress. But he also wanted CT scans and a new SWAN placed in her neck since the current one wasn't working to it's full potential.
Ebonie got to go on multiple trips today, the first was down to get the SWAN replaced but there were complications since her dialysis line was in her neck it was blocking the SWAN from going back into her heart. She was brought back to the room so they could ultrasound her groin and chest to find the best way to adjust. So, off to trip #2, the dialysis port was moved to her groin, which she HATES because she can't bend her leg up or the pressure messes up. The SWAN was also replaced into her neck again. The problem with all of this was having to stop the dialysis while they got everything under control and her fluid built back up so we are starting over again.
It's like Ebonie takes a big step forward and two small steps back, it's getting hard to see her laying there sedated and unable to tell us when she is in pain, if she is hot or cold, if she needs to be readjusted in her bed. I hate this for her and can't wait for the day Dr. L walks in and says he is finally comfortable with her condition. I can't wait for her to be able to come off the ventilator again even if she is needy and says some really random hilarious things. I just want my girl back and I need her to talk to me while I sit here all day! I need her to tell me what movies to watch, what to get for dinner, and what she needs!
Words are failing me at the moment. I wrote a better comment but lost it when I hit the back button by mistake. The gist of it was that I have always admired your devotion to Ebonie. I have always thought that she was a lucky girl to have such a champion in her corner as she has with you. She hit the lottery of awesome kickass moms! #EbonieIsAFighter because #BeverlyIsAFighter. Hang in there.
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