Today I decided to actually start the blog, there are several posts from things in a journal I was writing but I want to make sure Ebonie has a way to read her story and see all of the amazing support from friends, family and the community.
Cake, Hope & Love did a fundraiser, donating all proceeds to help with medical bills and expenses while in the hospital. Giovanni's in Fairborn opened for a special night just to do a fundraiser. Leah made some shirts to sell, Tisha & Michelle are selling wrist bands, Erin (Ben's mom) made stickers to sell, Wyatt and Ava's mom are selling wrist bands too! I know there are so many people helping with hospital expenses and medical bills. I am so incredibly grateful and cannot even begin to express how it means to have the support of everyone. We have had so many gift cards and monetary donations which has been great to be able to eat at the hospital or order food. We get so many cards and have people dropping things off constantly, it's incredible.
There are so many emotions, and we all know I am not one to show emotions; I think I have hugged more hospital staff and people visiting than my entire life. As much as I am not a hugging kind of person, I will take almost any hug and all of the support! Ebonie has had some great nurses Chet, Lydia, April, Jonathan just to name a few. It's probably getting on their nerves but I ask about everything that is happening, why and what everything means.
So on to today's update... Dr. L has a way with words and those of you who have met him get it. Today he sees progress from each day since her transplant but is still not comfortable with where she is. Dialysis is working getting fluid off and helping flush some of the medication. The medication is still a balancing act between blood pressure, heart rate, heart function, blood sugar, sedation, pain medication and everything else. Also trying to make sure the ECMO sites are all clean and healing well. Most of the day has been Ebonie sleeping, moving her legs around and opening her eyes a little bit. Coach N came down to stay with her and visit today, I think she knows when people are here and it definitely helps lift her spirits.
As exhausted as I am, I can't wait for the day they tell me I can climb into Ebonie's bed and watch a movie and take a nap with her. I definitely miss our movie and cuddle days!
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