Today was a bit of a whirlwind with nurses, therapy, visitors, and tests. It's one of those days where you don't have time to sit down and think, even now Ebonie has alarms going off and is restless in the bed! I hate feeling like I have no control over anything, and we all know how I like to be in control of everything! The respiratory therapist today that sometimes they ask caregivers to do little tasks so they can feel like they are helping and involved. So generally, I keep her face clean, move her chest drain tubes and containers and let the doctors know when alarms are going off since they are pretty quiet. It's better than sitting in the room not doing anything but also, I know it is just busy work to keep me distracted sometimes.
Today Ebonie had OT & PT for about 30 minutes, but Ebonie sat on the side of the bed, and I GOT TO HUG HER!!! We are not big huggers, but I have not got to hug her in almost 3 weeks, and it was the best feeling ever! She was still medicated quite a bit and out of it but they were proud of her and said she was definitely trying to hold herself up. That was a big move and it exhausted her! They generally will come in Monday-Friday and depending what they have on the weekends they could come in then too.
Cindi, Mitch and Nicole came to visit today and got to hang out for a bit. Mr. Coble came and brought a gift for when Ebonie is a awake that will help with hand dexterity, mental wellness and all of the nurses were jealous! The support and encouraging words is truly a blessing and appreciated more than I think anyone knows.
Ebonie did a breathing test, not to come off the ventilator quite yet but just to make her lungs and diaphragm work and improve. She did really well and was off the ventilator for about an hour; her CO2 level came back at 48 and Dr. L doesn't want it over 45 so back on the vent. But tomorrow is another day and another breathing test. I think this will be a daily thing unless other things are worse or more important.
I know there are so many questions about how Ebonie is doing, what the prognosis is and how this happened but unfortunately, we still do not have any answers. It's so frustrating not having answers and still dealing with so many specialists and departments in the hospital. I know everyone is working to get answers and have a better plan of action, but I just want to run all the tests myself NOW!
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